We participated in an exhibit called Testify at our church that showed this morning. Our story and the image they used are below. Delighted laughter and the thumping of dancing bare feet sound from of our backyard deck. Our eyes meet and the familiar twinkle says what we don’t have to: we love our kids. Praise God, for life is good. If feels good...
Let it be known that I’d like to be done with hospitals and funerals for a while. While I’m at it, I’ll add breakups and unemployment to the list. Done. Thank you. The mess of things gone south for those close to us is enough to make one wonder if it’s contagious. Nevertheless, the importance of the shadows in life is not lost on...
Having Down syndrome automatically qualifies Whitney for government funded early education services. Since birth she has met with a teacher and/or specialists each week through the county’s Early Start program. Over the last month or two we have been preparing to enter the public school system. (!!!) When Whitney turns 3 she “graduates” out of the county program and into a pre-K special classroom. ...
Whitney’s original heartbeat had a whoosh whoosh whoosh sound. After surgery, with VSD all patched up it’s now a thump thump thump. Amazing, huh!? On another note, we’ve got the hospital bill and yes, there are quite a few decimal places. Sticker shock? Well, not really, we knew this was a pretty big deal. Still, I didn’t expect it to start with a 3....
So I resigned from my coaching job today. Through much deliberation I’ve realized that the immensity of the time and energy commitment of running a high school program is too much for me and my family at this point. I’ve done almost everything to keep coaching a part of my life the past four years, I even birthed both babies during volleyball seasons with...
The pressure/tension/stress around here has been of epic proportions in the past month…so I thought I’d share some of the things that has kept me from losing it altogether…. Love notes. The support and prayers and texts and emails of dear friends from various parts of my life have been a lifeline. Knowing one is not alone must be the single-handedly most comforting reality. ...
Whitney’s homecoming from the hospital was a week ago yesterday. We are thrilled with how “normal” our life is already…the surgery successfully closed up the hole in her heart and her resilient little body is recovering quickly. Here’s a recount of the day-by-day… The night before the surgery…bath time with Gramby. Day 1: Daybreak arrival. Happy drugs. Emotional parents not wanting to let...
sike: A misspelling of psych. Knowing Sonia was thirsty, Jonathan teased her with his soda. “Here, you can have a sip…psych!” www.urbandictionary.com What a whirlwind. The hospital cried wolf. I feel like I had a baby. Exhausted and yet euphoric. I escaped my worst nightmare. I woke up to a reality where my sweating,panic and screams fizzled into the “you’re safe, it can’t get...
Having a child is like having your heart walk around outside your body. Um. yes. I am more and more aware that my heart is running around willy-nilly ducking in and out of places that were most certainly off my self-protective itinerary. Today we ran a pre-op marathon with all kinds of pokes and prods and tests. Whitney was brave, cooperative, and had impressive...